Patient Evidence Submissions
Registered Advocacy Groups
The Ontario Public Drug Program is currently accepting submissions of patient evidence from the following advocacy groups. The advocacy groups are invited to provide patient evidence on any of the drugs listed on the drug review schedule. Only submissions from advocacy groups are accepted to ensure that perspectives from many patients and caregivers are captured collectively.
The Ministry will not be notifying any advocacy groups that may be interested in submitting patient evidence on what drugs are under review. Advocacy groups are encouraged to check the drug review schedule on a regular basis for updates on drugs that are pertinent to the group for providing patient evidence.
Submission of patient evidence is not limited to the advocacy groups listed below. The ministry does not endorse any specific group. Advocacy group who are not on this list are encouraged to register by completing the Advocacy Registration Form (English | French)
| Registered Advocacy Groups |
|---|
| ACTION Ontario for People with Neuropathic Pain |
| Alliance for Open Access to Psychiatric Medications |
| Alzheimer's Foundation for Caregiving in Canada In |
| Anaphylaxis Canada |
| Aplastic Anemia and Myelodysplasia Association of Canada |
| The Arthritis Society, Ontario Division |
| Asthma Society of Canada - National Asthma Patient Alliance |
| Brain Tumor Foundation |
| Canadian Arthritis Patient Alliance |
| Canadian Association of Wound Care |
| Cancer Advocacy Coalition of Canada |
| Canadian Continence Foundation |
| Canadian Council of the Blind |
| Canadian Hospice Palliative Care Association |
| Canadian Society for Mucopolysaccharide & Related Diseases |
| Canadian Organization for Rare Disorders |
| Canadian Treatment Action Council |
| Canadian Pain Coalition |
| Canadian Patient Coalition |
| Canadian Pemphigus and Pemphigoid Foundation |
| Canadian PKU and Allied Disorders Inc. |
| Canadian Pulmonary Fibrosis Foundation | Centre for ADHD Advocacy Canada |
| Consumer Advocare Network |
| COPD Canada |
| COPD Canada Patient Network |
| CLL Patient Advocacy Group |
| CNIB |
| The Chronic Pain Association of Canada |
| The Chronic Myelogenous Leukemia Society of Canada |
| Cystic Fibrosis Canada |
| Eczema Society of Canada |
| The Endometriosis Network |
| Epilepsy Halton Peel |
| Epilepsy London & Area (Epilepsy Support Centre) |
| Epilepsy Ottawa - Carleton |
| Epilepsy Toronto |
| GI Society |
| Heart and Stroke Foundation (Ontario) |
| Huntington Society of Canada |
| Kidney Cancer Canada |
| Life Raft Group Canada |
| Lung Cancer Canada |
| Lupus Canada |
| Lymphoma Foundation |
| Magpie Media Inc. |
| Mastocytosis Society Canada |
| Melanoma Network of Canada |
| Mulitple Sclerosis Society of Canada, Ontario Division |
| Myeloma Canada |
| The National Gaucher Foundation of Canada |
| Ontario Lung Association |
| Ontario Traumatic Injury Association |
| Osteoporosis Canada |
| Parkinson Society Canada |
| Parkinson Society Canada Ontario Region |
| Prostate Cancer Canada |
| Save Your Skin Foundation |
| Schizophrenia Society of Ontario |
| Sjogren's Society of Canada |
| Skin Patient Alliance |
| Scleroderma Society of Ontario |
| Stroke Survivors Association of Ottawa |
| Tourette Syndrome Foundation of Canada |
See also:
- Ontario Guidelines for Patient Evidence Submissions
- Drug Review Schedule
- Patient Evidence Submission Form
english | french - Advocacy Group Registration Form
english | french - Registered Advocacy Groups
- How to Guide for Advocacy Groups
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