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Ministry Status: Activation Status

Patient Evidence Submissions

Registered Advocacy Groups

The Ontario Public Drug Program is currently accepting submissions of patient evidence from the following advocacy groups. The advocacy groups are invited to provide patient evidence on any of the drugs listed on the drug review schedule. Only submissions from advocacy groups are accepted to ensure that perspectives from many patients and caregivers are captured collectively.

The Ministry will not be notifying any advocacy groups that may be interested in submitting patient evidence on what drugs are under review.  Advocacy groups are encouraged to check the drug review schedule on a regular basis for updates on drugs that are pertinent to the group for providing patient evidence.

Submission of patient evidence is not limited to the advocacy groups listed below. The ministry does not endorse any specific group. Advocacy group who are not on this list are encouraged to register by completing the Advocacy Registration Form (English | French)

Registered Advocacy Groups
ACTION Ontario for People with Neuropathic Pain
Alliance for Open Access to Psychiatric Medications
Alzheimer's Foundation for Caregiving in Canada In
Anaphylaxis Canada
Aplastic Anemia and Myelodysplasia Association of Canada
The Arthritis Society, Ontario Division
Asthma Society of Canada - National Asthma Patient Alliance
Brain Tumor Foundation
Canadian Arthritis Patient Alliance
Canadian Association of Wound Care
Cancer Advocacy Coalition of Canada
Canadian Continence Foundation
Canadian Council of the Blind
Canadian Hospice Palliative Care Association
Canadian Society for Mucopolysaccharide & Related Diseases
Canadian Organization for Rare Disorders
Canadian Treatment Action Council
Canadian Pain Coalition
Canadian Patient Coalition
Canadian Pemphigus and Pemphigoid Foundation
Canadian PKU and Allied Disorders Inc.
Canadian Pulmonary Fibrosis Foundation
Centre for ADHD Advocacy Canada
Consumer Advocare Network
COPD Canada
COPD Canada Patient Network
CLL Patient Advocacy Group
CNIB
The Chronic Pain Association of Canada
The Chronic Myelogenous Leukemia Society of Canada
Cystic Fibrosis Canada
Eczema Society of Canada
The Endometriosis Network
Epilepsy Halton Peel
Epilepsy London & Area (Epilepsy Support Centre)
Epilepsy Ottawa - Carleton
Epilepsy Toronto
GI Society
Heart and Stroke Foundation (Ontario)
Huntington Society of Canada
Kidney Cancer Canada
Life Raft Group Canada
Lung Cancer Canada
Lupus Canada
Lymphoma Foundation
Magpie Media Inc.
Mastocytosis Society Canada
Melanoma Network of Canada
Mulitple Sclerosis Society of Canada, Ontario Division
Myeloma Canada
The National Gaucher Foundation of Canada
Ontario Lung Association
Ontario Traumatic Injury Association
Osteoporosis Canada
Parkinson Society Canada
Parkinson Society Canada Ontario Region
Prostate Cancer Canada
Save Your Skin Foundation
Schizophrenia Society of Ontario
Sjogren's Society of Canada
Skin Patient Alliance
Scleroderma Society of Ontario
Stroke Survivors Association of Ottawa
Tourette Syndrome Foundation of Canada

See also:

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For More Information

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