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Ministry Status: Activation Status

Patient Evidence Submissions

Registered Advocacy Groups

The Ontario Public Drug Program is currently accepting submissions of patient evidence from the following advocacy groups. The advocacy groups are invited to provide patient evidence on any of the drugs listed on the drug review schedule. Only submissions from advocacy groups are accepted to ensure that perspectives from many patients and caregivers are captured collectively.

The Ministry will not be notifying any advocacy groups that may be interested in submitting patient evidence on what drugs are under review.  Advocacy groups are encouraged to check the drug review schedule on a regular basis for updates on drugs that are pertinent to the group for providing patient evidence.

Submission of patient evidence is not limited to the advocacy groups listed below. The ministry does not endorse any specific group. Advocacy group who are not on this list are encouraged to register by completing the Advocacy Registration Form (English | French)

Registered Advocacy Groups
AboutFace Craniofacial Family Society
ACTION Ontario for People with Neuropathic Pain
aHUS Canada
Alliance for Open Access to Psychiatric Medications
Alzheimer's Foundation for Caregiving in Canada In
Ambassadors for Mental Wellness
Anaphylaxis Canada
Aplastic Anemia and Myelodysplasia Association of Canada
The Arthritis Society, Ontario Division
Asthma Society of Canada - National Asthma Patient Alliance
Brain Tumor Foundation
Canadian Arthritis Patient Alliance
Canadian Association of Wound Care
Cancer Advocacy Coalition of Canada
Canadian Breast Cancer Network
Canadian Cancer Survivor Network
Canadian Continence Foundation
Canadian Council of the Blind
Canadian Diabetes Association
Canadian Hospice Palliative Care Association
Canadian Liver Foundation
Canadian Organization for Rare Disorders
Canadian Pain Coalition
Canadian Patient Coalition
Canadian Pemphigus and Pemphigoid Foundation
Canadian PKU and Allied Disorders Inc.
Canadian Psoriasis Network
Canadian Pulmonary Fibrosis Foundation
Canadian Skin Patient Alliance
Canadian Spondylitis Association
Canadian Society for Mucopolysaccharide & Related Diseases
Canadian Treatment Action Council
Canadian Woman with Fibroids
Carcinoid Neuroendocrine Tumour Society (CNETS) Canada
Centre for ADHD Advocacy Canada
Colorectal Cancer Association of Canada
Consumer Advocare Network
COPD Canada
COPD Canada Patient Network
CLL Patient Advocacy Group

CLLSLL at Groups.io

CNIB
The Chronic Pain Association of Canada
The Chronic Myelogenous Leukemia Society of Canada
Crohn’s and Colitis Canada
Chronic Lymphocytic Leukemia Patient Advocacy Group
Cystic Fibrosis Canada
Eczema Society of Canada
The Endometriosis Network
Epilepsy Halton Peel
Epilepsy London & Area (Epilepsy Support Centre)
Epilepsy Ontario
Epilepsy Ottawa - Carleton
Epilepsy Toronto
Foundation Fighting Blindness
Foundation for Prader-Willi Research Canada (FPWR Canada)
GI Society
HAE Canada
Heart and Stroke Foundation (Ontario)
Huntington Society of Canada
Hypertension Canada
The Isaac Foundation
Kidney Cancer Canada
The Leukemia & Lymphoma Society of Canada
Life Raft Group Canada
Lung Cancer Canada
Lupus Canada
Lymphoma Foundation
Magpie Media Inc.
Mastocytosis Society Canada
Melanoma Network of Canada
Mood Disorders Association of Ontario
Mulitple Sclerosis Society of Canada, Ontario Division
Myeloma Canada
The National Gaucher Foundation of Canada
Ontario Lung Association
Ontario Traumatic Injury Association
Osteoporosis Canada
Ovarian Cancer Canada
Pancreatic Cancer Canada
Parkinson Society Canada
Parkinson Society Canada Ontario Region
Patient Commando
PKD Foundation of Canada
Prostate Cancer Canada
Pulmonary Hypertension Association of Canada
Rethink Breast Cancer
Robbie’s Rainbow
Sarcoma Cancer Foundation of Canada
Save Your Skin Foundation
Schizophrenia Society of Ontario
Sickle Cell Awareness Group of Ontario
Sjogren's Society of Canada
Scleroderma Society of Ontario
Stroke Survivors Association of Ottawa
Thyroid Cancer Canada
Tourette Syndrome Foundation of Canada
Tuberous Sclerosis Canada Sclerose Tubereuse
Type 1 Together
The UnHysterectomy
Women's Health Initiative Network

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