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Excellent Care for All

The Inflammatory Bowel Disease (IBD) Online Tool

Health Care Challenge

Children who have long coped with a chronic illness, like inflammatory bowel disease (IBD), face additional challenges as they transition into adolescence and early adulthood. It can be difficult to navigate the change from a parent taking the lead in speaking with doctors to young patients advocating for themselves and self-managing their disease.

There are some 200,000 Canadians who live with the hardship of one of two types of IBD –Crohn’s disease and ulcerative colitis.

Calandra Carkner, 18, was diagnosed with Crohn’s disease in June 2010. “Some days I’d go to the washroom up to 20 times. I was exhausted, in constant pain and afraid; I didn’t know what was happening to me,” Carkner says, describing the challenge of living with IBD.

Close tracking and monitoring of IBD is essential to avoid unexpected flare-ups and maintain a good quality of life.

Real Change In Action

The Hospital for Sick Children (SickKids) has launched a free mobile app aimed at empowering teenagers – as well as parents of young children – with IBD to better self-manage and take control of the disease.  The myIBD app allows patients to track their food, bowel movements, pain and frequency of washroom visits on a mobile device. The app provides patients with 24/7 access to reliable and accessible educational tools to help patients better manage their symptoms.

“myIBD app offers a visual tracking system so patients can monitor their disease activity and seek help when necessary – sooner rather than later,” says Karen Frost, one of the project leaders and IBD nurse practitioner in the Division of Gastroenterology, Hepatology and Nutrition at SickKids.

The easy to use tool has helped restore Carkner’s life to one of a typical busy and active teenager. “myIBD app helped me understand triggers like stress, lack of sleep or a particular food and this helps to give me a sense of control,” she adds.

Better Quality, Sustainable Care

If parents and young people with IBD are closely monitoring their symptoms, flare-ups can be caught earlier or prevented and hospital admissions can be avoided.

Tools like myIBD support Ontarians coping with chronic diseases to better self-manage their conditions. They can help to improve their quality of life as well as strengthen the overall health system by reducing the burden of unnecessary or avoidable hospital visits.

Learn more about the Inflammatory Bowel Disease (IBD) Online Tool.

Contact person :
Meaghan Wright
Genetic, Environmental and Microbal (GEM) Project Coordinator
Sick Kids Hospital
Tel.: 416-813-7554
Email: meaghan.wright@sickkids.ca

For More Information

Call ServiceOntario, Infoline at 1-866-532-3161
In Toronto, 416-314-5518
TTY 1-800-387-5559
In Toronto, TTY 416-327-4282
Hours of operation : 8:30am - 5:00pm