Ministry Reports

Ehlers-Danlos Syndrome Expert Panel Report

February 2016

The Ehlers-Danlos Syndrome Expert Panel Report provides recommendations on ways Ontario's health care system can better respond to people living with this rare, genetic disorder.

Read the response from the Ministry of Health and Long-Term Care.

The Ehlers-Danlos Syndrome Expert Panel was established by Critical Care Services Ontario at the request of the province in July 2015. It brought together medical professionals with experience treating patients with EDS, and heard from patients and their families.

The full report is available for download in PDF format below:

Ehlers-Danlos Expert Panel Report: Final Report
17 pages | [PDF]

To view Portable Document Format PDF files, you will need to have Adobe Acrobat® Reader installed on your computer. You can download this free software from the Adobe website.

Call ServiceOntario, Infoline at:
1-866-532-3161 (Toll-free in Ontario only)
TTY 1-800-387-5559.
In Toronto, TTY 416-327-4282
Hours of operation: 8:30am - 5:00pm

If you are a member of the media, call Communications and Marketing Branch at 416-314-6197 or visit our News Room section.