Patient Evidence Submissions
Registered Advocacy Groups
The Ontario Public Drug Program is currently accepting submissions of patient evidence from the following advocacy groups. The advocacy groups are invited to provide patient evidence on any of the drugs listed on the drug review schedule. Only submissions from advocacy groups are accepted to ensure that perspectives from many patients and caregivers are captured collectively.
The Ministry will not be notifying any advocacy groups that may be interested in submitting patient evidence on what drugs are under review. Advocacy groups are encouraged to check the drug review schedule on a regular basis for updates on drugs that are pertinent to the group for providing patient evidence.
Submission of patient evidence is not limited to the advocacy groups listed below. The ministry does not endorse any specific group. Advocacy group who are not on this list are encouraged to register by completing the Advocacy Registration Form (English | French)
| Registered Advocacy Groups |
|---|
| AboutFace Craniofacial Family Society |
| ACTION Ontario for People with Neuropathic Pain |
| aHUS Canada |
| Alliance for Open Access to Psychiatric Medications |
| ALS Society of Canada |
| Alzheimer's Foundation for Caregiving in Canada In |
| Ambassadors for Mental Wellness |
| Anaphylaxis Canada |
| Aplastic Anemia and Myelodysplasia Association of Canada |
| The Arthritis Society, Ontario Division |
| Asthma Society of Canada - National Asthma Patient Alliance |
| Brain Tumor Foundation |
| Canadian Arthritis Patient Alliance |
| Canadian Association of Psoriasis Patients |
| Canadian Association of Wound Care |
| Cancer Advocacy Coalition of Canada |
| Canadian Breast Cancer Network |
| Canadian Cancer Survivor Network |
| Canadian Continence Foundation |
| Canadian Council of the Blind |
| Canadian Diabetes Association |
| Canadian Hospice Palliative Care Association |
| Canadian Liver Foundation |
| Canadian Organization for Rare Disorders |
| Canadian Pain Coalition |
| Canadian Patient Coalition |
| Canadian Pemphigus and Pemphigoid Foundation |
| Canadian PKU and Allied Disorders Inc. |
| Canadian Psoriasis Network |
| Canadian Pulmonary Fibrosis Foundation |
| Canadian Skin Patient Alliance |
| Canadian Spondylitis Association |
| Canadian Society for Mucopolysaccharide & Related Diseases |
| Canadian Treatment Action Council |
| Canadian Woman with Fibroids |
| Carcinoid Neuroendocrine Tumour Society (CNETS) Canada | Centre for ADHD Advocacy Canada |
Centre for ADHD Awareness, Canada (CADDAC) |
| Colorectal Cancer Association of Canada |
| Consumer Advocare Network |
| COPD Canada |
| COPD Canada Patient Network |
| CLL Patient Advocacy Group |
CLLSLL at Groups.io |
| CNIB |
| The Chronic Pain Association of Canada |
| The Chronic Myelogenous Leukemia Society of Canada |
| Crohn’s and Colitis Canada |
| Chronic Lymphocytic Leukemia Patient Advocacy Group |
| Cystic Fibrosis Canada |
| Eczema Society of Canada |
| The Endometriosis Network |
| Epilepsy Halton Peel |
| Epilepsy London & Area (Epilepsy Support Centre) |
| Epilepsy Ontario |
| Epilepsy Ottawa - Carleton |
| Epilepsy Toronto |
| Foundation Fighting Blindness |
| Foundation for Prader-Willi Research Canada (FPWR Canada) |
| GI Society |
| HAE Canada |
| Heart and Stroke Foundation (Ontario) |
| Huntington Society of Canada |
| Hypertension Canada |
| The Isaac Foundation |
| Kidney Cancer Canada |
| Kidney Foundation of Canada Ontario Branch |
| The Leukemia & Lymphoma Society of Canada |
| Life Raft Group Canada |
| Lung Cancer Canada |
| Lupus Canada |
| Lymphoma Foundation |
| Magpie Media Inc. |
| Mastocytosis Society Canada |
| Melanoma Network of Canada |
| Migraine Canada |
| Mood Disorders Association of Ontario |
| Multiple Sclerosis Society of Canada, Ontario Division |
| Myeloma Canada |
| The National Gaucher Foundation of Canada |
| Ontario Lung Association |
| Ontario Traumatic Injury Association |
| Osteoporosis Canada |
| Ovarian Cancer Canada |
| Pancreatic Cancer Canada |
| Parkinson Society Canada |
| Parkinson Society Canada Ontario Region |
| Patient Commando |
| PKD Foundation of Canada |
| Prostate Cancer Canada |
| Pulmonary Hypertension Association of Canada |
| Rethink Breast Cancer |
| Robbie’s Rainbow |
| Sarcoma Cancer Foundation of Canada |
| Save Your Skin Foundation |
| Schizophrenia Society of Ontario |
| Sickle Cell Awareness Group of Ontario |
| Sjogren's Society of Canada |
| Scleroderma Society of Ontario |
| Stroke Survivors Association of Ottawa |
| Thyroid Cancer Canada |
| Tourette Syndrome Foundation of Canada |
| Tuberous Sclerosis Canada Sclerose Tubereuse |
| Type 1 Together |
| The UnHysterectomy |
| Women's Health Initiative Network |
See also:
- Ontario Guidelines for Patient Evidence Submissions
- Drug Review Schedule
- Patient Evidence Submission Form
english | french - Advocacy Group Registration Form
english | french - Registered Advocacy Groups
- How to Guide for Advocacy Groups
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